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Rare Artist

Rare Artist

Washington, DC

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Natural Representation, Image 1.
  • Natural Representation
Prism Of Love by Solana Acuna - Severe Combined Immunodeficiency (SCID), Image 1.
  • Solana Acuna - Severe Combined Immunodeficiency (SCID)
  • Prism Of Love
Marker
Soaring Unbroken by Eva Agus - Nasopharyngeal Carcinoma, Image 1.
  • Eva Agus - Nasopharyngeal Carcinoma
  • Soaring Unbroken
Gouache, acrylic & ink on wood
Upside Down by Theresa Alo - Indolent Systemic Mastocytosis, Image 1.
  • Theresa Alo - Indolent Systemic Mastocytosis
  • Upside Down
Clay
My Ventilator by Alice Arkell - Congenital Central Hypoventilation Syndrome, Image 1.
  • Alice Arkell - Congenital Central Hypoventilation Syndrome
  • My Ventilator
Resiliant by Jenn Arnold - Hidradenitis Suppurativa, Image 1.
  • Jenn Arnold - Hidradenitis Suppurativa
  • Resiliant
Self Portrait by Seth Bailey - Infantile Spasms, Image 1.
  • Seth Bailey - Infantile Spasms
  • Self Portrait
Window Into The Soul by Sarah Bailey - Ushers Syndrome Type 2B, Image 1.
  • Sarah Bailey - Ushers Syndrome Type 2B
  • Window Into The Soul
Acrylic, oils, stretched canvas
Lungs of Life by Ella Balasa - Cystic Fibrosis, Image 1.
  • Ella Balasa - Cystic Fibrosis
  • Lungs of Life
Pencil on Paper
Amazing Creation by Brenna Bruck - Fragile X Syndrome, Image 1.
  • Brenna Bruck - Fragile X Syndrome
  • Amazing Creation
Canvas and acrylic paint pens
Sprout by Wes Burian - Fabry Disease, Image 1.
  • Wes Burian - Fabry Disease
  • Sprout
Hand-Drawn Digital
President Obama and the Affordable Care Act by Benjamin Cavanagh - Mucopolysaccharidosis type IV (MPS IVA), Image 1.
  • Benjamin Cavanagh - Mucopolysaccharidosis type IV (MPS IVA)
  • President Obama and the Affordable Care Act
Avery by Tim Chambers - Usher Syndrome, Image 1.
  • Tim Chambers - Usher Syndrome
  • Avery
Elephant In The Room by Nell Choi - Neuromyelitis Optica, Image 1.
  • Nell Choi - Neuromyelitis Optica
  • Elephant In The Room
Clay
Twist of Life by Nell Choi - Neuromyelitis Optica Spectrum Disorder, Image 1.
  • Nell Choi - Neuromyelitis Optica Spectrum Disorder
  • Twist of Life
Clay
20 Pills A Day Keeps The Demons At Bay by Madison Cooke - Rocky Mountain Spotted Fever, Image 1.
  • Madison Cooke - Rocky Mountain Spotted Fever
  • 20 Pills A Day Keeps The Demons At Bay
I AM RESILIENT by Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility, Image 1.
  • Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility
  • I AM RESILIENT
Digital Art
Storm of Hope by Amy Curran - GNE Myopathy, Image 1.
  • Amy Curran - GNE Myopathy
  • Storm of Hope
Behind The Eye by Sarah Dillon - Thyroid Eye Disease, Image 1.
  • Sarah Dillon - Thyroid Eye Disease
  • Behind The Eye
Breathtaking by Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient, Image 1.
  • Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient
  • Breathtaking
Raw Canvas by Adare - Ehlers Danlos Syndrome + 18 comorbidities, Image 1.
  • Adare - Ehlers Danlos Syndrome + 18 comorbidities
  • Raw Canvas
Oil on Linen Canvas
Colors of Courage by Rylie Erbacher - Spinal Muscular Atrophy, Type 2, Image 1.
  • Rylie Erbacher - Spinal Muscular Atrophy, Type 2
  • Colors of Courage
Chalk Pastels, Pencil
Digested by Beatriz Fraga - Neurosarcoidosis, Image 1.
  • Beatriz Fraga - Neurosarcoidosis
  • Digested
Colored Pencil
Where To Go by Ruofan Gu - Marquio, Image 1.
  • Ruofan Gu - Marquio
  • Where To Go
Clara's World by Melinda Habingreither - Gangliosidosis (GM1), Image 1.
  • Melinda Habingreither - Gangliosidosis (GM1)
  • Clara's World
Hope Through Trees by Kelley Hennessy - Friedreich’s Ataxia, Image 1.
  • Kelley Hennessy - Friedreich’s Ataxia
  • Hope Through Trees
Dragonfly by Chloe Hoover - Dysautonomia, Image 1.
  • Chloe Hoover - Dysautonomia
  • Dragonfly
Dreamy Delirium by Elizabeth Hoverman - Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC) Syndrome, Image 1.
  • Elizabeth Hoverman - Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC) Syndrome
  • Dreamy Delirium
The Art of Surviving Craniopharyngioma by Eugenie Hsu - Craniopharyngioma (Caregiver), Image 1.
  • Eugenie Hsu - Craniopharyngioma (Caregiver)
  • The Art of Surviving Craniopharyngioma
Oil On Canvas
Escape from Reality by Emmalyn Hudson - Glutaric Aciduria/Acidemia Type 1, Image 1.
  • Emmalyn Hudson - Glutaric Aciduria/Acidemia Type 1
  • Escape from Reality
Staying Afloat With A Rare Disease by Waiyee Hui - Antisynthetase Syndrome, Image 1.
  • Waiyee Hui - Antisynthetase Syndrome
  • Staying Afloat With A Rare Disease
Acrylic markers, pigment-ink pens
A Mother's Love by Carino Imbrogno - Ehlers-Danlos Syndrome, Image 1.
  • Carino Imbrogno - Ehlers-Danlos Syndrome
  • A Mother's Love
Pastels
The Black Hole by Aanya Khattar - Family Member of Someone with an Arteriovenous Malformation, Image 1.
  • Aanya Khattar - Family Member of Someone with an Arteriovenous Malformation
  • The Black Hole
Boys Are Girls Are Bugs by Marshall Kopacki - Paroxysmal Nocturnal Hemoglobinuria, Image 1.
  • Marshall Kopacki - Paroxysmal Nocturnal Hemoglobinuria
  • Boys Are Girls Are Bugs
Moyamoya’s Seasonal Tapestry by Niki Lake - Moyamoya and Undiagnosed, Image 1.
  • Niki Lake - Moyamoya and Undiagnosed
  • Moyamoya’s Seasonal Tapestry
Poetry
Marooned by Sylvie Leyerle - Episodic Ataxia, Image 1.
  • Sylvie Leyerle - Episodic Ataxia
  • Marooned
Walking to a Portal by Branden Lim - Spinal Muscular Atrophy, Image 1.
  • Branden Lim - Spinal Muscular Atrophy
  • Walking to a Portal
No Borders For My Voice by Maria Fernanda Llave - Spinal Muscular Atrophy Type 2, Image 1.
  • Maria Fernanda Llave - Spinal Muscular Atrophy Type 2
  • No Borders For My Voice
Poetry
Transformation From Fragile (X) to an Unbreakable Spirit by Darienne Majeske - Fragile X Syndrome, Image 1.
  • Darienne Majeske - Fragile X Syndrome
  • Transformation From Fragile (X) to an Unbreakab...
Rainbow by Georgia Markellou - Mayer-Rokitansky-Kuster-Hauser MRKH Type II, Image 1.
  • Georgia Markellou - Mayer-Rokitansky-Kuster-Hauser MRKH Type II
  • Rainbow
In Someone Else’s Shoes by DaNice D Marshall - Granulomatosis with Polyiingitis, Image 1.
  • DaNice D Marshall - Granulomatosis with Polyiingitis
  • In Someone Else’s Shoes
Acrylic
The Unseen Battle: Hidden Struggles in Rare Diseases and the Art of Balancing Spoons by Jessica Miles - Classical Type Ehlers Danlos Syndrome (COL5A2 gene mutation) resulting in a permanent ostomy, Image 1.
  • Jessica Miles - Classical Type Ehlers Danlos Syndrome (COL5A2 gene mutation) resulting in a permanent ostomy
  • The Unseen Battle: Hidden Struggles in Rare Dis...
Sarge and Oonagh is Rare by Oonagh Newman - Systemic Juvenile Idiopathic Arthritis & Interstitial Lung Disease, Image 1.
  • Oonagh Newman - Systemic Juvenile Idiopathic Arthritis & Interstitial Lung Disease
  • Sarge and Oonagh is Rare
Construction paper, glue and marker
Alive Again by Zanny Nicholas - Complex Regional Pain Syndrome, Image 1.
  • Zanny Nicholas - Complex Regional Pain Syndrome
  • Alive Again
Music
A Borboleta by Arthur Oliveira - Secondary Adrenal Insufficiency, Image 1.
  • Arthur Oliveira - Secondary Adrenal Insufficiency
  • A Borboleta
Crow’s Armor by Lia Ottinot - Sickle Cell Anemia, Image 1.
  • Lia Ottinot - Sickle Cell Anemia
  • Crow’s Armor
Clay
Happy Flowers in Tall Grass by Ella Palinchak - Alagille Syndrome, Image 1.
  • Ella Palinchak - Alagille Syndrome
  • Happy Flowers in Tall Grass
Experiment by Grey Pomeroy -, Image 1.
  • Grey Pomeroy -
  • Experiment
Acrylic paint, mod podge, syringes, tea bags, hot glue
Oma's Flowers by Lonnie Lu Rivera - Laryngeal Cleft, Mitochondrial Disease, Image 1.
  • Lonnie Lu Rivera - Laryngeal Cleft, Mitochondrial Disease
  • Oma's Flowers
Watercolor and Sharpie
Rare by Maya Rivera - Mitochondrial Disease, Image 1.
  • Maya Rivera - Mitochondrial Disease
  • Rare
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Rare Artist, powered by the EveryLife Foundation for Rare Diseases and established in 2010, is a national advocacy program at the intersection of art and health. Through creative expression, the community translates lived rare disease experience into advocacy, storytelling, and public impact.