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Rare Artist

Rare Artist

Washington, DC

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2025 Award Recipients

Prism Of Love by Solana Acuna - Severe Combined Immunodeficiency (SCID), Image 1.
Soaring Unbroken by Eva Agus - Nasopharyngeal Carcinoma, Image 1.
Digested by Beatriz Fraga - Neurosarcoidosis, Image 1.
Staying Afloat With A Rare Disease by Waiyee Hui - Antisynthetase Syndrome, Image 1.
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2024 Award Recipients

Upside Down by Theresa Alo - Indolent Systemic Mastocytosis, Image 1.
Twist of Life by Nell Choi - Neuromyelitis Optica Spectrum Disorder, Image 1.
I AM RESILIENT by Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility, Image 1.
The Art of Surviving Craniopharyngioma by Eugenie Hsu - Craniopharyngioma (Caregiver), Image 1.
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2023 Award Recipients

Natural Representation, Image 1.
My Ventilator by Alice Arkell - Congenital Central Hypoventilation Syndrome, Image 1.
Self Portrait by Seth Bailey - Infantile Spasms, Image 1.
20 Pills A Day Keeps The Demons At Bay by Madison Cooke - Rocky Mountain Spotted Fever, Image 1.
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2022 Award Recipients

Amazing Creation by Brenna Bruck - Fragile X Syndrome, Image 1.
Sprout by Wes Burian - Fabry Disease, Image 1.
Elephant In The Room by Nell Choi - Neuromyelitis Optica, Image 1.
Colors of Courage by Rylie Erbacher - Spinal Muscular Atrophy, Type 2, Image 1.
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2021 Award Recipients

Window Into The Soul by Sarah Bailey - Ushers Syndrome Type 2B, Image 1.
Lungs of Life by Ella Balasa - Cystic Fibrosis, Image 1.
Raw Canvas by Adare - Ehlers Danlos Syndrome + 18 comorbidities, Image 1.
Hope Through Trees by Kelley Hennessy - Friedreich’s Ataxia, Image 1.
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2020 Award Recipients

A Borboleta by Arthur Oliveira - Secondary Adrenal Insufficiency, Image 1.
Avery by Tim Chambers - Usher Syndrome, Image 1.
Behind The Eye by Sarah Dillon - Thyroid Eye Disease, Image 1.
Breathtaking by Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient, Image 1.
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Rare Artist, powered by the EveryLife Foundation for Rare Diseases and established in 2010, is a national advocacy program at the intersection of art and health. Through creative expression, the community translates lived rare disease experience into advocacy, storytelling, and public impact.