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Rare Artist

Rare Artist

Washington, DC

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2025 Award Recipients

Alive Again by Zanny Nicholas - Complex Regional Pain Syndrome, Image 1.
Another You by Sophie Seaver - MED13L (Sibling), Image 1.
Digested by Beatriz Fraga - Neurosarcoidosis, Image 1.
Imperfect Pathway by Krista Webb - Usher Syndrome, Image 1.
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2024 Award Recipients

Crow’s Armor by Lia Ottinot - Sickle Cell Anemia, Image 1.
Experiment by Grey Pomeroy -, Image 1.
Hidden Clarity by Lena Smith - Granular Corneal Dystrophy, Image 1.
I AM RESILIENT by Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility, Image 1.
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2023 Award Recipients

20 Pills A Day Keeps The Demons At Bay by Madison Cooke - Rocky Mountain Spotted Fever, Image 1.
brThe Unseen Battle: Hidden Struggles in Rare Diseases and the Art of Balancing Spoons by Jessica Miles - Classical Type Ehlers Danlos Syndrome (COL5A2 gene mutation) resulting in a permanent ostomy, Image 1.
Dreamy Delirium by Elizabeth Hoverman - Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC) Syndrome, Image 1.
Hands of Resilience by Emma Schaberg - Marfan Syndrome, Image 1.
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2022 Award Recipients

A Mother's Love by Carino Imbrogno - Ehlers-Danlos Syndrome, Image 1.
Amazing Creation by Brenna Bruck - Fragile X Syndrome, Image 1.
An Aspiring Pharmacist by Miranda Walker - Neuromyelitis Optica, Image 1.
Colors of Courage by Rylie Erbacher - Spinal Muscular Atrophy, Type 2, Image 1.
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2021 Award Recipients

Boys Are Girls Are Bugs by Marshall Kopacki - Paroxysmal Nocturnal Hemoglobinuria, Image 1.
Dragonfly by Chloe Hoover - Dysautonomia, Image 1.
Escape from Reality by Emmalyn Hudson - Glutaric Aciduria/Acidemia Type 1, Image 1.
Eye of the Beholder by Casey Witte - Albinism (OCA2 Variant), Image 1.
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2020 Award Recipients

A Borboleta by Arthur Oliveira - Secondary Adrenal Insufficiency, Image 1.
Avery by Tim Chambers - Usher Syndrome, Image 1.
Behind The Eye by Sarah Dillon - Thyroid Eye Disease, Image 1.
Breathtaking by Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient, Image 1.
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Rare Artist, powered by the EveryLife Foundation for Rare Diseases and established in 2010, is a national advocacy program at the intersection of art and health. Through creative expression, the community translates lived rare disease experience into advocacy, storytelling, and public impact.