My granddaughter Clara is watching the ocean from her wheelchair. Clara is nonverbal, but communicates with her expressions & enjoys the world around her. She can’t say how she feels about the sight & smell of the ocean or the sea air on her face, but we know by looking at her. We’re blessed to have this sweet child with her smiles & giggles in our lives. Clara is 6 & has GM1 gangliosidosis, a progressive, incurable, fatal disease, but she doesn’t know it. All she knows is that she’s very loved. Birth Year: 1949
- Melinda Habingreither - Gangliosidosis (GM1)
- Clara's World
- Current Location: San Marcos, TX
- Collections: 2020 Award Recipients