This self-portrait identifies my vulnerabilities and speaks about embracing everything that makes me who I am. The good, the bad and the stuff I don’t fully understand.
My feet play a huge part in who I am. I have a hereditary skin disorder called Epidermolysis Bullosa Simplex. I do not have the proper protein anchors to keep the layers of my skin connected. That means that heat and friction cause sores equivalent to a third-degree burn to appear, specifically on my hands and feet. Most of my life I didn’t know the specifics of the disorder but it has affected every decision I make including my recreational activities, my job and not having children. Today I understand it much better and have a lifestyle that keeps it mostly under control.